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Links to Related
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 www.jama.com
Journal of the American Medical Association,
has frequent articles on end-of-life care.
www.growthhouse.org
This web site is an international gateway to resources for life-threatening
illness and end of life care. Its primary mission is to improve
the quality of compassionate care for people who are dying through
public education and global professional collaboration. This
site's search engine offers access to the net's most comprehensive
collection of reviewed resources for end of life care. Over one
hundred health care web sites offer remote access to its database
to complement their own content. Its international Guest Editors
cover major topics and regions of the world.
This site also hosts the Inter-Institutional
Collaborative Network On End Of Life Care (IICN) which links
major organizations internationally. The IICN offers healthcare
professionals multidisciplinary conferences, mailing lists, and
online discussions covering all aspects of end of life care.
It also offers chat rooms to the general public for peer support.
An online bookstore with book reviews helps to research things
in depth.
www.agingwithdignity.org
This site offers a blank living will called Five Wishes,
which provides a plain-English language format for writing your
own living will and which can be downloaded from the website.
This format is especially useful for people who want to go beyond
just medical care directions and on to the kind of physical comfort
and setting they desire, the family and friends they want to
see, etc. The Five Wishes format was designed with the
help of a Committee of the American Bar Association, which maintains
that it meets the legal requirements for living wills of the
District of Columbia and 33 states, including Maryland and Virginia.
www.hospicefoundation.org
The hospice movement has for many years provided comfort care
to patients with terminal illnesses and only a few months to
live. This site can help to locate a hospice and is a source
of publications.
www.lastacts.org
The policy issues surrounding "end of life" have been
gaining increased recognition as a problem we do not deal well
with here in the United States. The NASC Foundation is a member
of the "Last Acts Campaign," a coalition of national
organizations with an interest in improving care at the end of
life. One of the Coaliton's key purposes is to change the American
culture and attitudes toward death. Newsletter articles on "end
of life" issues are available here.
www.ssjhs.org/Ethics/index.html
The SSJ Health System, based in Michigan, is one of the largest
faith-based health care systems in the United States. The SSJ
System was one of the pioneers in providing compassionate care
for dying patients and remains today one of the "Centers
of Excellence" for this kind of health care. This site describes
the System's approach to care for terminally ill patients. Like
many other faith-based approaches, the SSJ model shows that terminal
care need not involve extraordinary and invasive measures to
remain moral and caring. Visitors to this site can compare the
approach of their local hospital or doctor to the compassionate
vision of the SSJ Health System.
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